Caregivers love the web but developers could do more to engage them
As the father of an 11-year-old with Crohn’s disease, Justin Vandergrift is often in search of information that can help him better understand his daughter’s illness and give her the best support. When she was prescribed steroids, he took to the internet to see how long the weight gain would last and what other parents were experiencing with their children. When she went in for an operation, he went online nearly every night to read up on the procedure and ways that he and his family could help her.
Once you know how to filter out the bad information online, he said, the web can be a valuable resource for educating yourself and reaching a wider community of parents and patients.
“The best thing it does for me is that it shows me there are others in the role that I’m in… that their outcomes were positive and here are…
View original post 567 more words